Health Record Rights Index · country brief · this country's data as of October 2, 2026

Who holds the health record in Ireland?

In 2026, Ireland scores 47 out of 100 for how much say a person has over their own health record. It is tied for 60th of 198 countries and territories, and could rank anywhere from 48th to 87th allowing for scoring error, in the Mixed band (45 to 64). Who holds the keys: the government. Source: Health Record Rights Index, SuperTruth, this country's data as of October 2, 2026.

The government decides, with limited say for the person. Its strongest right, compared with the typical country, is your say over research use (70 out of 100, against 46 for the typical country). No right falls below the typical country; the closest to it is control over who sees it (30 out of 100, against 30 for the typical country).

Irish records are still largely paper, but a national Shared Care Record went live for clinicians in 2026; patient controls are legislated, not in force.

Published · updated · this country's data as of October 2, 2026 · research tool, not legal advice

overall score · Mixed band, 45 to 64
47/100
rank among 198 countries and territories; likely 48th to 87th, allowing for scoring error
Tied for 60th
confidence in our evidence
High
strength of our evidence (DTI™)
92/100 (Platinum)

Questions people ask

Can I see my health record in Ireland?

In 2026, getting your full record scores 55 out of 100 in Ireland; the typical country scores 40 to 45. Patients have a free GDPR and FOI right to their whole record, but get it by writing to each hospital or service. The HSE Health App shows only part of the record (appointments, waiting lists, vaccines) and had about 125,000 registered users in January 2026. Source: Citizens Information, and the other sources below.

Who controls health records in Ireland?

In 2026, the government holds the keys to your health record in Ireland. Control over who sees it scores 30 out of 100 in Ireland; the typical country scores 30. The new Shared Care Record shares data by default on a public interest basis, with no opt-out found and no patient-readable access log. Rights to restrict access and to be told who looked are in the Health Information Act 2026 but not commenced. Source: HSE, March 2026, and the other sources below.

How does Ireland compare?

In 2026, Ireland scores 47 out of 100, against 39 for the typical country. This brief compares it with Greenland (47 out of 100), Belarus (46 out of 100) and North Macedonia (45 out of 100). Source: the ranking of all 198 countries and territories.

Eight rights, compared with Greenland, Belarus, North Macedonia, the typical EU country and the typical country

Scores out of 100, by right
Getting your full record20%5530 · 50 · 60
Control over who sees it20%3044 · 45 · 28
Privacy and security15%5650 · 35 · 42
One record across your care15%3864 · 55 · 52
Protection from sale and ads10%5855 · 45 · 48
Doctors see it when treating you10%3666 · 50 · 50
Your say over research use5%7049 · 49 · 46
Rules for AI in your care5%5020 · 40 · 30

Black dot: Ireland. Hollow dots: Greenland, Belarus, North Macedonia (scores out of 100 on the right, same order). Gray line: the typical country of all 198. Dashed teal line: the typical EU country. Overall: Ireland 47 out of 100, the typical EU country 61. Scores move in steps of about 5 points, so read a rank with its likely range.

What would Ireland need to change to score higher?

Ireland sits in Mixed (45 to 64); Strong starts at 65. Every right is at or above the typical country. The two with the most room to grow, weighted by how much each counts, are control over who sees it (30 out of 100, against 30 for the typical country) and one record across your care (38 out of 100, against 38 for the typical country). Our scoring rules give more points for:

  • Control over who sees it: A way to say no to sharing (or to be asked first), a log you can read of who opened your record, and finer choices about who sees what. Together these put this right at 60 to 80 out of 100.
  • One record across your care: Family doctors, hospitals, labs, pharmacies, insurers and public health all linked to one record that is used across the country.

Which laws give health record rights in Ireland?

  • Health Information Act 2026 (No. 10 of 2026): National EHR for every patient, duty to share, restriction and access-notice rights; key sections not commenced.
  • Data Protection Act 2018 (Section 36(2)) (Health Research) Regulations 2018 (S.I. 314/2018): Explicit consent is a required safeguard for health research, unless the HRCDC grants a declaration.
  • Data Protection Act 2018: Irish GDPR law; fines on public bodies capped at 1 million euros (s. 141).

Doctors, waits and private care context, not part of the score

Doctors per 10,000
39.9 2024 · 16th highest of 38 OECD countries
Nurses and midwives per 10,000
154 2024 · 4th highest of 38 OECD countries
Private insurance + out-of-pocket
21.9% 2023 · 21st highest of 35 OECD countries
Record reaches private care?
partly
"It is a secure clinical system that gives authorised healthcare staff read-only access to key patient information from various sources. These include: hospitals primary care community services eventually, private healthcare providers"

Real cases

  • June 30, 2026 · Data Protection Commission (Annual Report 2025 case studies) Patient's request to correct GP record went unanswered until the regulator asked
  • June 30, 2026 · Data Protection Commission (Annual Report 2025 case studies) · archived copy GP surgery emailed a patient's details unencrypted to the wrong person

Compare Ireland

Cite this brief

In 2026, Ireland scored 47 out of 100 for how much say a person has over their own health record, tied for 60th of 198 countries and territories (could be 48th to 87th), in the Mixed band. Who holds the keys: the government. Source: Health Record Rights Index, SuperTruth, this country's data as of October 2, 2026, https://healthrecordrights.com/brief/ireland/

The 23 sources for Ireland

Each source appears once, under the first right it supports. Titles are shown as our research agents recorded them, usually in the page's own language; text in square brackets is our machine translation. Links were checked on the date shown.

Getting your full record (4 sources)

  1. “Access to medical records in the public healthcare system”

    Citizens Information (government guidance) · Title in English

    No date recorded · Link checked October 2, 2026 (opened)

    Used for: Getting your full record

    https://www.citizensinformation.ie/en/health/legal-matters-and-health/access-to-medical-records/

  2. “Minister for Health welcomes increase in HSE Health app usage as registrations pass 125,000”

    Department of Health (government guidance) · Title in English

    Dated January 5, 2026 · Link checked October 2, 2026 (opened)

    Used for: Getting your full record

    https://www.gov.ie/en/department-of-health/press-releases/minister-for-health-welcomes-increase-in-hse-health-app-usage-as-registrations-pass-125000/

  3. “Ireland confirmed as one of the EU's strongest digital performers”

    Department of Enterprise, Tourism and Employment (government guidance) · Title in English

    Dated August 6, 2026 · Link checked October 2, 2026 (opened)

    Used for: Getting your full record

    https://enterprise.gov.ie/en/news-and-events/department-news/2026/august/ireland-confirmed-as-one-of-the-eus-strongest-digital-performers.html

  4. “2026 Digital Decade eHealth Indicator Study, executive summary”

    European Commission (international body) · Title in English

    Dated June 2026 · Link checked October 3, 2026 (blocked by the site's bot protection)

    Used for: Getting your full record

    https://data.europa.eu/doi/10.2759/8560168

Control over who sees it (4 sources)

  1. “Data Protection Impact Assessment summary: Shared Care Record”

    HSE (government guidance) · Title in English

    Dated March 2026 · Link checked October 2, 2026 (opened)

    Used for: Control over who sees it; Doctors see it when treating you

    https://about.hse.ie/publications/national-shared-care-record-dpia/

  2. “HSE Privacy Notice for patients and service users”

    HSE (government guidance) · Title in English

    Dated December 2024 · Link checked October 2, 2026 (opened)

    Used for: Control over who sees it

    https://about.hse.ie/publications/hse-privacy-notice-service-users/

  3. “Health Information Act 2026, No. 10 of 2026”

    Irish Statute Book (law or regulation) · Title in English

    Dated April 30, 2026 · Link checked October 2, 2026 (opened)

    Used for: Control over who sees it; Protection from sale and ads

    https://www.irishstatutebook.ie/eli/2026/act/10/enacted/en/index.html

  4. “Health Information Act 2026: commencement table”

    Irish Statute Book (law or regulation) · Title in English

    No date recorded · Link checked October 2, 2026 (opened)

    Used for: Control over who sees it; Protection from sale and ads; Doctors see it when treating you

    https://www.irishstatutebook.ie/eli/isbc/2026_10.html

Privacy and security (4 sources)

  1. “DPC announces final decision following inquiry into the HSE (paper records storage)”

    dataprotection.ie (regulator) · Title in English

    Dated September 2, 2026 · Link checked October 2, 2026 (opened)

    Used for: Privacy and security

    https://www.dataprotection.ie/en/news-media/latest-news/data-protection-commission-announces-final-decision-following-inquiry-health-service-executive-hse

  2. “Inquiry into Midlands Regional Hospital Tullamore”

    Data Protection Commission (regulator) · Title in English

    Dated June 10, 2026 · Link checked October 2, 2026 (opened)

    Used for: Privacy and security

    https://www.dataprotection.ie/en/dpc-guidance/decisions/inquiry-midlands-regional-hospital-tullamore

  3. “DPC publishes final decision following inquiry into Children's Health Ireland”

    dataprotection.ie (regulator) · Title in English

    Dated October 1, 2026 · Link checked October 2, 2026 (opened)

    Used for: Privacy and security

    https://www.dataprotection.ie/en/news-media/latest-news/data-protection-commission-publishes-final-decision-following-inquiry-childrens-health-ireland-chi

  4. “Data Protection Act 2018, section 141”

    Irish Statute Book (law or regulation) · Title in English

    Dated 2018 · Link checked October 2, 2026 (opened)

    Used for: Privacy and security

    https://www.irishstatutebook.ie/eli/2018/act/7/section/141/enacted/en/html

One record across your care (4 sources)

  1. “HSE Shared Care Record”

    HSE (government guidance) · Title in English

    No date recorded · Link checked October 2, 2026 (opened)

    Used for: One record across your care; Doctors see it when treating you

    https://about.hse.ie/our-work/technology/shared-care-record/

  2. “Shared Care Record continues to grow with expanded datasets and nationwide rollout”

    HSE (government guidance) · Title in English

    Dated June 19, 2026 · Link checked October 2, 2026 (opened)

    Used for: One record across your care

    https://about.hse.ie/news/national-shared-care-record-nscr-continues-to-grow-with-expanded-datasets-and-nationwide-rollout/

  3. “Minister announces Government approval to commence procurement for a National Electronic Health Record”

    Department of Health (government guidance) · Title in English

    Dated February 5, 2026 · Link checked October 2, 2026 (opened)

    Used for: One record across your care

    https://www.gov.ie/en/department-of-health/press-releases/minister-announces-government-approval-to-commence-procurement-for-a-national-electronic-health-record/

  4. “HSE Laboratory Information System (MedLIS)”

    HSE (government guidance) · Title in English

    No date recorded · Link checked October 2, 2026 (opened)

    Used for: One record across your care

    https://about.hse.ie/our-work/technology/national-laboratory-information-system-medlis/

Protection from sale and ads (2 sources)

  1. “Data Protection Act 2018 (Section 36(2)) (Health Research) Regulations 2018, S.I. No. 314 of 2018”

    Irish Statute Book (law or regulation) · Title in English

    Dated 2018 · Link checked October 2, 2026 (opened)

    Used for: Protection from sale and ads; Your say over research use

    https://www.irishstatutebook.ie/eli/2018/si/314/made/en/print

  2. “Who we are”

    Health Research Consent Declaration Committee (regulator) · Title in English

    No date recorded · Link checked October 2, 2026 (opened)

    Used for: Protection from sale and ads; Your say over research use

    https://hrcdc.ie/who-we-are/

Doctors see it when treating you (1 source)

  1. “Almost 100k patient record requests amid lack of online system”

    RTÉ (news) · Title in English

    Dated May 13, 2026 · Link checked October 2, 2026 (opened)

    Used for: Doctors see it when treating you

    https://www.rte.ie/news/2026/0513/1573052-hse-medical-records/

Your say over research use (2 sources)

  1. “Decisions: public application log and meeting minutes”

    HRCDC (regulator) · Title in English

    No date recorded · Link checked October 2, 2026 (opened)

    Used for: Your say over research use

    https://hrcdc.ie/decisions/

  2. “HealthData@IE: national project implementing EHDS”

    Department of Health (government guidance) · Title in English

    Dated September 9, 2026 · Link checked October 2, 2026 (opened)

    Used for: Your say over research use

    https://www.gov.ie/en/department-of-health/collections/healthdataie-national-project-implementing-ehds/

Rules for AI in your care (2 sources)

  1. “AI Office of Ireland established under the Regulation of Artificial Intelligence Act 2026”

    DETE (government guidance) · Title in English

    Dated July 30, 2026 · Link checked October 2, 2026 (opened)

    Used for: Rules for AI in your care

    https://www.gov.ie/en/department-of-enterprise-tourism-and-employment/press-releases/ai-office-of-ireland-established-under-the-ai-regulation-bill-2026-paul-byrne-appointed-as-ceo/

  2. “HIQA publishes first National Guidance on Responsible and Safe Use of AI in Health and Social Care”

    HIQA (regulator) · Title in English

    Dated July 29, 2026 · Link checked October 2, 2026 (opened)

    Used for: Rules for AI in your care

    https://www.hiqa.ie/hiqa-news-updates/hiqa-publishes-first-national-guidance-responsible-and-safe-use-ai-health-and

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OECD: Organisation for Economic Co-operation and Development (38 mostly high-income countries). DTI™: the Data Trust Index, which grades the evidence behind each score. SuperTruth makes it and publishes this index. Everything here comes from public information: laws, government and regulator pages, court decisions, published news, WHO, OECD and World Bank data. Full sources: https://healthrecordrights.com/brief/ireland/#sources. SuperTruth built this index and sells health data verification products; no one paid to be included. Research tool, not legal advice. Our scores and our own words are CC BY 4.0; quoted law and source titles stay with their owners.